Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 Errors for the DLG4 Community
Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 Errors for the DLG4 Community
Helping Overcome PSD-95 Errors for the DLG4 Community
Helping Overcome PSD-95 Errors for the DLG4 Community
To further research and create translational medicine and treatment options that create a better quality of life for DLG4 patients.
In the long-term we hope our efforts will go beyond DLG4 and help increase research and legislation in this field for early detection and treatment of all rare genetic disorders.
Americans affected by rare genetic diseases like DLG4
identified human
genetic disorders
of disorders have an FDA-approved therapy
In March of 2020, we gave birth to our second child, Harvey. At 18-months, he was diagnosed with DLG4-related Synaptopathy. Harvey is now 3-years-old, and although he is a happy little boy, he cannot crawl, walk, talk, or feed himself. He has difficulty learning due to a random, single letter mutation on the DLG4 gene
We are fundraising to create a treatment for DLG4. As of May 2023, we have raised almost $310K toward our updated goal of $350K.
We are working with the Yu Lab, Hebrew University, Everlum Bio, Jackson Labs, and other world-renowned researchers. 100% of donations go directly toward developing a treatment
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