Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 coding Errors for the DLG4 Community
Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 coding Errors for the DLG4 Community
Helping Overcome PSD-95 coding Errors for the DLG4 Community
Helping Overcome PSD-95 coding Errors for the DLG4 Community
To further research and create translational medicine and treatment options that create a better quality of life for DLG4 patients.
In the long-term we hope our efforts will go beyond DLG4 and help increase research and legislation in this field for early detection and treatment of all rare genetic disorders.
Americans affected by rare genetic diseases like DLG4
identified human
genetic disorders
of disorders have an FDA-approved therapy
In March of 2020, we gave birth to our second child, Harvey. At 18-months, he was diagnosed with DLG4 Synaptopathy. Harvey is now 2-years-old, and although he is a happy little boy, he cannot crawl, walk, talk, or feed himself. He has difficulty learning due to his DLG4 mutation.
We are fundraising to create a treatment for DLG4 Synaptopathy. As of January 2023,, we have raised $240K toward our goal of $275K.
We are working with Everlum Bio, established consulting companies, and world-renowned researchers. All donations will go directly toward treatment development.
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