Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 Errors for the DLG4 Community
Welcome to the HOPE for Harvey Foundation for DLG4
Helping Overcome PSD-95 Errors for the DLG4 Community
Helping Overcome PSD-95 Errors for the DLG4 Community
Helping Overcome PSD-95 Errors for the DLG4 Community
To further research and create translational medicine and treatment options that create a better quality of life for DLG4 patients.
In the long-term we hope our efforts will go beyond DLG4 and help increase research and legislation in this field for early detection and treatment of all rare genetic disorders.
Americans affected by rare genetic diseases like DLG4
identified
genetic disorders
of disorders have an FDA-approved treatment
In March of 2020, we gave birth to our second child, Harvey. At 18-months, he was diagnosed with DLG4-related Synaptopathy. Harvey is now 4-years-old, and struggles with seizures, independent mobility and cannot speak or feed himself. He has difficulty learning due to a random, letter mutation on the DLG4 gene
In spring 2025, we have begun discussions regarding a newer, safer mRNA technology, that has an 18 month path to clinical trials. We hope to raise an additional $100,000 for this treatment in 2025.
100% of donations go straight to researchers
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